The Hard Truth of Patient Engagement: Realizations from Stanford’s MedicineX…
I’ve now recovered from my #MedXhangover. The term commonly used to refer to the general malaise that the majority of attendees experience once they return to real-life after spending three days living within the confines of Stanford MedicineX (MedX) community. MedX is not your average run-of-the-mill healthcare conference. MedX is different. It tries and succeeds in its focus on creating active collaboration and change amongst patients, industry, researchers, designers and practitioners. Through engaging, emotional talks and activities encouraging cross-pollination of ideas, discussion and interconnectivity, MedX inspires attendees and gets them out of their comfort zones in a safe way. With speakers like Susannah Fox, Jonathan Bush and impassioned #Ignite patient speakers with their amazing stories,
For me as a digital health/patient adherence service provider this is very relevant. Digital health (and specifically patient engagement technology) is different from traditional tech that sell products to consumers and businesses. Trying to shoe-horn software as a service (SAAS) models within the framework of B2B or B2C channels are challenging to say the least. Navigating and driving value amongst patients, providers, pharma and payers in an environment of hyper vigilant security, privacy, scrutiny and scientific rigor makes one want to run for the hills. Let’s call it the B2B2P syndrome.Part of the key here is understanding the inherent difference between consumers and patients: As one speaker aptly put it “Consumers have free will to exchange resources for good, whilst a patient has a tethered will to exchange resources for something bad”. That’s some heavy s#*t. Now try creating a business within that framework!? As a result, what came clear to me this year was that patients don’t actually want to be ‘engaged’. People want to be heard
Real ‘engagement’ requires amplifying patient voices, providing a seat at the table and interacting on the same level while ensuring industry, clinicians and researchers are engaging, listening and designing from the ground up. Most in healthcare have not realized that many patients are already engaged in that they are inherently open-source, professionally sharing and consuming data. Many patients are masters of the DIY and adept at leveraging democratized technology and innovation, creating new movements and crowd-sourcing their conditions and solutions. True engagement provides something useful and desirable across stakeholders’ needs. Patient engagement requires supply and demand. Today, there is much more commercial supply than demand for top-down designed patient engagement technologies. How can we change the equation? Personally, I will be taking many lessons from MedX. The main one being that as a solution provider I have to bring stakeholders together with empathy to come up with innovative solutions to the problems of today and tomorrow. Making change is an agile and iterative science. Let’s stop asking patients to comply, engage, learn, abstain, do-more, act-now, and enter for a chance to win! Rather, I suggest digital health providers take a page from Stanford MedicineX and bring stakeholders together to come up with solutions to problems using empathy for innovation. Make change happen using longitudinal timeframes, design thinking and amplified stakeholder voices. How would you do it? Amos Adler, M.Sc, Founder and President